Seize the Wave!

Seize the Wave is a special surf instruction event brought to you through a collaboration
between Epilepsy Services of NJ and Paul’s Purple Warriors.

Event Information

Date: July 21, 2021
Time: 9 a.m to 1:00 p.m
Location: Sea Isle City, Cape May County at 37th street beach.  

30 participants can register to participate in instructional surf lessons provided by our partners, the Heritage Surf Shop The surf lessons will start on the beach and then each participant will go out into the ocean with a surfer.  

Epilepsy Services of New Jersey, an affiliate of The Family Resource Network, is a state-wide, non-profit charitable agency dedicated to helping to improve the quality of life for people affected by epilepsy and their loved ones. ESNJ provides comprehensive support, personalized services, and advocacy for individuals and their families in order to maximize their participation in society.

Paul’s Purple Warriors’ mission is to promote epilepsy education and awareness and to provide financial assistance to the families of children with epilepsy.  Paul’s Purple Warriors NJ was founded on the premise of protecting students by creating a safe school environment through staff training.

ESNJ and Paul’s Purple Warriors: Partners and Advocates for Paul’s Law

Paul’s Law, enacted January 9, 2020, requires New Jersey school districts to have individualized seizure action plans for each student with epilepsy or other seizure disorders. School personnel are required to take seizure first aid and safety training. This in an online course which and be taken through Epilepsy Services of NJ at https://epilepsyservicenj.org  Knowledge is key to our students’ safety. Through Paul’s Law we can spread awareness about how to protect students in the event they have a seizure at school.

 

Paul St. Pierre is a 14-year-old, 9th grade student at Eastern Reginal High School.  He resides in Maple Shade NJ. with his mom Colleen.  Paul enjoys playing golf and basketball.  He loves to watch football on Sundays.  He is a big fan of the Philadelphia Eagles and the 76ers. He was diagnosed with Epilepsy in February of 2019, after 2 months of various doctors’ appointments. In April, Paul and his mom met an epilepsy advocate Shari Dudo on Facebook who was working in Texas to create seizure safe schools. She encouraged Paul to advocate for seizure safe schools in NJ. Then Paul and his mom met with Andrea Racioppi and Liza Gundell from the Epilepsy Alliance of New Jersey and they joined forces on this endeavor. In June, Paul met with Senator James Beach to request a bill and Senator Beach loved the idea.  By January, Paul’s Law passed through the house and the senate unanimously and was signed by Governor Murphy.

Colleen Quinn is Paul St. Pierre’s mom.  She has worked with children and adults with autism and other disabilities for the last 26 years in a variety of capacities for both private and public schools. She received her B.A. from Rutgers and is a certified CPI instructor.  She spends her time with Paul and her close friends.  She enjoys art, golf, boating, and camping.  Since Paul’s diagnosis in 2019, she has worked tirelessly to help create Paul’s law.  She has become a dedicated fundraiser and epilepsy advocate, meeting with legislators on the state and national level to discuss legislation related to epilepsy.  She formed Paul’s Purple Warriors NJ., which is awaiting nonprofit status in New Jersey for epilepsy education and awareness.  She also manages a Facebook group National Advocates for Seizure Safe Schools to assist other advocates in pursuit of seizure safe schools in various states across America.

We’re Here to Help

For assistance with epilepsy resources or questions about ESNJ services

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